A Year to Be Thankful For
As the calender is flipped to the last month of this year I have to take the time to look back at all that has happened this year. Thanksgiving Nov. 24th of this year marked my first year anniversary of being back on the transplant list. It was a bitter sweet day for me. Looking back, it was by FAR the worst year of my life. Being stuck in my bed for most of it, and getting sick several times that nearly ended my life. Simply put it SUCKED. But at the same time, I didnt die… I over came the opstical set in front of me leaving me extremely thankful for being alive.
I spent my Thanksgiving with my dads side of the family this year. My aunt, 2 uncles, my grandfather and cousin all gathered around the dinner table to celebrate our being together as I had not seen my grandpa or cousin or even my uncle in YEARS!! Even Melanie came and ate with us!! Danielle, my cousin as well as my grandpa stayed with us giving me the opportunity to see them everyday while they were here. Fortunately, I was able to maintain fairly stable health wise. I did catch something right before the holiday though and was put on the dreaded Leviquin. Of course I had to get sick and be put on a medication that makes me nauseous right before the biggest food day ever! I was able to ignore the the impulse to just spew everywhere and ate a good amount.
So other than turkey day happenings, not too much has gone on since my last post. I did get a new tattoo though! It is my favorite thus far being a tribute to life and CF. The words “May you never take a breath for granted” placed under a wind swept dandelion representing the breath of life, spreading the seeds to begin new life and growth. Its simply my favorite tattoo ever it was made even cooler when my best friend EVER got the SAME one on her! really lovely and brought us that much closer to each other.
Health wise I have a few updates. Sugar wise I finally figured out why for a few days out of the month, my sugars go crazy. Apparently, my sugars spike right before I start my menses! So I now have my sugars under complete control. My vitamin D is extremely low. My endo doctor is scared Im going to break a bone if i trip or run into something. Where a normal vitamin D level is 30, mine is 4. So now I have to take 2000 IUs of it everyday for 8 weeks and then get some IV med they give to old people who are going through bone loss. Im actually really nervous about that, supposed to really be crappy making you sick and sore and crap. My PFTs are maintaining at about .64. I also had a couple of sick days, actually one of them started while I was waiting in the waiting room at the hospital waiting to see my doctor. I was fine ALL day about 2 hours after we got there I developed a fever and just started feelin like crap. Yesterday was just aweful though. At 6:30 I was woken up by some pain in my pelvis area, I spent an hour trying to get comfortable but I just couldnt get comfy. The pain slowly escalated forcing me to take some loritab and tylenol as well as some fenergan. An hour later no change and now double over in pain and crying, I took another loritab, tylenol and fenergan cocktail. Still an hour later, im in sever pain. I finally called shands who told me they were to busy to see me and told me to come up the next day to see the doc, or go to the local ER. So they were useless and I suffered for most of the day. But today, I feel much better and hope to get out of the house to go check out a new barn to move my horsies to. ta ta for now.