I wrote this on Facebook last September and I feel like its important and I should share it once more…
So I’m sitting here thinking about my life with CF and all the people who have ever told me that I’m strong and brave or even that I’m a hero, I don’t understand why anyone would have said that… as a patient with CF I’ve grown accustomed to all the hospitals and medications… just a way of life for me.
I believe the TRUE CF heroes are our care takers and loved ones. Not enough is said about the sacrifices they make for us. Here they are aware of our illness and the inevitable low points that come with it and yet they are still at our bedside.
This is a shout out to all the nurses who have just sat bedside holding their patients hands as they get yet another IV med
This is a shout out to all the parents who have stayed up all night to make sure their child is comfortable
This is a shout out to all the close friends who have helped give CPT and prayed by our sides
This is a shout out to all the husbands and wives who commit their entire lives to a chronically ill individual
On behalf of all my fibros and cysters i would like to say Thank you, if it wasn’t for all of your support at least half of us would not be here.